Two weekends ago we went to the first Starfish Dash in San Antonio! It was a great way to raise awareness and money for research about chromosome 18 abnormalities. If you’re new here, our son Liam has 18 p deletion, which means that the short arm of his 18th chromosome is partially deleted. There were only a few people at the Starfish Dash with a chromosome 18 abnormality, but there were lots of people there for support and everyone was very welcoming and kind to us. We hope to go every April as long as we are able to, and continue to make face to face connections with the people there. We are so glad that we went and that we had a big group of family to show support for Liam!
As you can see, we had a great time and can’t wait to do it again next year. In other news, Liam is making some awesome progress with his physical therapy! He recently turned 18 months old, and since then he’s been taking off with his walking– he’s much more coordinated and steady on his feet now. He gets tubes put in his ears next week for chronic ear infections and fluid, so we’re hoping that he’ll be feeling a bit better, hear things better, and have better balance a couple of weeks after the procedure. He can definitely hear now, because he loooooooves music, but he might be missing out on key consonant sounds that he needs to learn. He’s such a sweet guy that deserves to hear things as crisply as possible!
‘Til next time!